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Breaking the silence: A qualitative exploration of parental perspectives of children with Goldenhar Syndrome

Posted on Jan 29, 2024

Goldenhar Syndrome is a rare congenital condition, typically characterized by craniofacial abnormalities and vertebral malformations. Due to its rare and complex nature, the etiology is unconfirmed, resulting in parental uncertainty and subsequent emotional sequelae.

https://www.sciencedirect.com/science/article/pii/S2405844024003591

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