Breaking the silence: A qualitative exploration of parental perspectives of children with Goldenhar Syndrome

Goldenhar Syndrome is a rare congenital condition, typically characterized by craniofacial abnormalities and vertebral malformations. Due to its rare and complex nature, the etiology is unconfirmed, resulting in parental uncertainty and subsequent emotional sequelae.

https://www.sciencedirect.com/science/article/pii/S2405844024003591

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